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How do parents handle pans or pandas flare ups?

25 people answered this on the record, across 10 organisations. The change they described most often was better family or relationship life — 10 of 25 raised it unprompted. 9 described symptoms resolved or reduced. The timeframe described most often was over a year. Each figure is a count of what someone said in a recorded interview.

Based on interviews recorded up to 2026-08-06. Updated as new interviews arrive.

Individual results vary. This is one customer's first-hand account of their own experience, recorded on camera and published unedited. It is not medical advice, and nothing here is intended to diagnose, treat, cure, or prevent any condition. Talk to a qualified healthcare professional before making decisions about your health.

What the answers had in common

Counts of interviews where the person described this in their own words.

Outcomes described by people answering: How do parents handle pans or pandas flare ups?
What changedInterviewsShare
Family & relationships10 of 2540%
Symptom relief9 of 2536%
Felt supported7 of 2528%
Better sleep6 of 2524%
Better systems5 of 2520%
Confidence4 of 2516%
  • And it's just a travesty that it's not more widely recognized and that this kind of help isn't available to everyone with children in this situation.Sidsel Overgaard
  • Currently what Addie is able to do now is sleep, she hasn't woken with rash itchy skin anything like that in weeks and prior to that so we're all getting much better sleep now as we are slowly but surely reintroducing…Dennis Elwell
  • My only wish, honestly, is that this resource is available to more people because we're in another country, in Europe, and I see some of the parents in these PANS/PANDAS groups that I'm in, struggling so much to get t…Sidsel Overgaard
  • Currently what Addie is able to do now is sleep, she hasn't woken with rash itchy skin anything like that in weeks and prior to that so we're all getting much better sleep now as we are slowly but surely reintroducing…Dennis Elwell

How long it took them

  • Over a year · 1

The interviews behind this answer

What they doubted first

  • The only thing that would have prevented us was just the fact that we were so far away at that time and getting to them required a lot of effort. But as soon as I spoke with them on the phone the first time, I knew that we'd made the right choice.Sidsel Overgaard
  • Aimee Garden admitted the cost was a significant barrier and required a hard conversation with her husband. However, they decided to prioritize the investment over the perpetual stress and budget of 'covering up' symptoms, ultimately concluding it was well wo…Aimee Garden
  • Adrianna Tuomi weighed the cost against finding an in-network provider but decided to proceed after reading testimonials and prioritizing her child's health. She concluded it was worth it because her son's extreme symptoms are now gone.Adrianna tuomi

Follow-up questions they answered

Is Arbor Health worth the travel for international patients?
Sidsel Overgaard initially worried about the effort required to travel from Europe to the United States. However, she felt she made the right choice during the first phone call, noting that the comprehensive care and expertise were unavailable in her home country. — Sidsel Overgaard
How does Arbor Health treat children with PANS?
The practice uses a long-term, comprehensive approach combining psychology and physical medicine. Sidsel noted that practitioners engage with children on their level, such as sitting on the floor to make them feel at ease during the initial assessment. — Sidsel Overgaard
What kind of support does Arbor Health provide during long-term treatment?
Sidsel describes the team as being with them 'every single step of the way,' checking in on changes and celebrating small victories to help the family recognize progress over months of treatment. — Sidsel Overgaard
Is the Eczema Transformation Program worth the cost?
Aimee Garden admitted the cost was a significant barrier and required a hard conversation with her husband. However, they decided to prioritize the investment over the perpetual stress and budget of 'covering up' symptoms, ultimately concluding it was well worth the sacrifice. — Aimee Garden
Can you use FSA funds for Dr. Ana-Maria Temple's program?
Yes, Aimee Garden noted that her family was able to use FSA funds to help defray the cost of the Eczema Transformation Program, making the financial commitment more manageable for their family. — Aimee Garden
Does the program work for babies as young as three months?
Aimee Garden joined the program when her son was only three months old following a major flare. She highlighted that it is the only program she found that addresses the whole system for infants that young. — Aimee Garden

Where these people were

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