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What helped children with PANS or PANDAS?

56 people recorded interviews about pans & pandas across 4 organisations. 25 of them mentioned better family or relationship life in their own words. The most common timeframe people described was over a year. Every figure below is a count of what people said in their recorded interview — not a clinical trial or a survey.

Parents describing diagnosis, treatment and recovery for PANS and PANDAS.

Individual results vary. This is one customer's first-hand account of their own experience, recorded on camera and published unedited. It is not medical advice, and nothing here is intended to diagnose, treat, cure, or prevent any condition. Talk to a qualified healthcare professional before making decisions about your health.

What people said changed

Counts of interviews where the person described this in their own words.

  • Family & relationships25 of 56 mentioned it
    Our-- My husband feels better.Hailey Wright
  • Symptom relief20 of 56 mentioned it
    We had already spent so much money on creams, on different creams, on doctors, on the allergist, and we were gonna spend so much more that we were spending money on Band-Aids.Hailey Wright
  • Felt supported16 of 56 mentioned it
    What made me say yes to the Eczema Transformation program was the level of support that I knew I was going to receive every single week, multiple times a week.Jessica Montehermoso
  • Better systems11 of 56 mentioned it
    So fast forward to today, he sleeps all night long, he loves the foods that he eats, he has a much better digestive system.Renata Walsh
  • Better sleep10 of 56 mentioned it
    Yes, there's the supplements and there's, you know, all of the creams and the diet, but this feels much more like a normal life where we sleep, we go places, we interact with people.Renata Walsh
  • Confidence9 of 56 mentioned it
    And trust me, I have tried every cream on the it was like the one of the only things that was giving me hope really was most surprising to me about this program was how much I gained education wise. it's completely ch…Olivia Frederick
  • Team & hiring9 of 56 mentioned it
    Jess if you have a chronic illness because you will have someone on your team, someone who is tuning into every detail of what's happening with your health and you will have somebody who you can reach at any point whe…Julia Burnham
  • Mood & stress8 of 56 mentioned it
    But we were able to use some FSA funds that helped defray the cost in our situation and also we realized that we'd rather deal with this, rather than it being a perpetual part of our family's stress and part of our fa…Aimee Garden

How long it took

  • Over a year · 1

Stories in this topic

Showing 12 of 56 interviews.

What people were sceptical about first

  • Jessica Montehermoso initially had to convince her husband that the cost was worth it. She now views the couple thousand dollars spent as a small price compared to the long-term diseases they are preventing by adopting this lifestyle.Jessica Montehermoso
  • S o before I started working with Lauren Lee Stone, I had been a seasoned chronic Lyme PANS, Pandas mom, working with a lot of different practitioners, trying traditional things like antibiotics and all these different treatments to help my son heal from PANS.Roseann Capanna-Hodge
  • Hailey Wright initially balked at the cost but realized they were already spending significant money on 'Band-Aids' like creams and specialists. She now states it is 'worth every single penny' because it delivered true healing rather than temporary relief.Hailey Wright

Frequently asked

Is the cost of the Eczema Transformation program worth it?
Jessica Montehermoso initially had to convince her husband that the cost was worth it. She now views the couple thousand dollars spent as a small price compared to the long-term diseases they are preventing by adopting this lifestyle. — Jessica Montehermoso
How does the Eczema Transformation program support parents?
The program offers high-level support with access to providers multiple times a week. Jessica noted that the team was patient and never made her feel like a burden, even when she asked many questions as a first-time mom. — Jessica Montehermoso
Can holistic methods work when traditional steroids fail?
After seeing eight or nine different providers and trying increasingly stronger topical steroids with no peace, Jessica found success with Dr. Ana-Maria Temple's gentle, slow, and educational approach that focuses on the child's specific needs. — Jessica Montehermoso
How can a clinician overcome feeling inadequate when treating complex chronic illness?
Raphael Lebovits found that joining the LDPC program provided the mentorship and peer group support necessary to remove the fear of not knowing everything. He emphasizes that having experts like Dr. Moorcroft and Dr. Montalvo to lean on allows clinicians to treat patients with more confidence. — Raphael Lebovits
Is Dr. Tom Moorcroft's training program based on scientific evidence?
Yes, Raphael Lebovits highlights that everything in the LDPC focuses on science and evidence-based studies. Dr. Tom ensures that relevant research and studies are easily accessible at the fingertips of every clinician in the program. — Raphael Lebovits
What is the philosophy behind Dr. Tom Moorcroft's approach to medicine?
According to Raphael Lebovits, Dr. Tom teaches that treating chronic illness and life itself is about balance. This sentiment was the primary factor that drew Raphael to the program, alongside the mantra 'slow is smooth, smooth is fast.' — Raphael Lebovits

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