Is hospice care scary for families who haven't experienced it?

Stacey Lievens acknowledges that the word 'hospice' is scary to many, but explains that Empowered Endings removes that fear by giving patients a say in how they exit this lifetime. She describes the process as effortless and easeful rather than clinical or invasive.

How quickly can Empowered Endings respond to a crisis?

Stacey reports that after calling Dr. Bob Uslander to report her stepfather's declining health, he arrived at their home within the hour to assess the situation and bring in his nursing team.

How does Empowered Endings treat non-responsive patients?

Stacey highlights that even though her stepfather Edgar was in a coma and non-responsive, the nurse talked to him directly, explaining every action with love and empathy to ensure he remained a dignified participant in his own process.

How can I find healthcare providers that aren't just approved by my insurance?

Debora Wayne notes that KnoWEwell shows all possible solutions, not just those approved by insurance companies. This allows patients to discover leading-edge treatments and providers they would otherwise never know about.

How do I avoid feeling like just a number at the doctor's office?

Debora Wayne suggests using KnoWEwell to explore and resonate with professionals ahead of time. The platform allows you to get a sense of the provider before entrusting them with your or your child's care, ensuring a sense of trust.

Is there a way to see all healthcare choices under one umbrella?

Yes, Debora Wayne highlights that KnoWEwell brings together all healthcare choices in one place. This enables patients to see who they will be working with and what type of treatment they will receive before making a decision.

What do real people say about patient advocacy?

13 people recorded interviews about patient advocacy across 11 organisations. 5 of them mentioned feeling heard and supported by the provider in their own words. The most common timeframe people described was over a year. Every figure below is a count of what people said in their recorded interview — not a clinical trial or a survey.

First-hand accounts from people who talked about patient advocacy in their recorded interview.

What people said changed

Counts of interviews where the person described this in their own words.

Felt supported5 of 13 mentioned it
“We were able to, you know, find the joy, not specifically in that moment, but just, like, find a little peace to exhale and love each other and support each other and cheer him on in the most beautiful way to make tha…”Stacey Lievens
More clients3 of 13 mentioned it
“Amie gave us an outline of every question that we should ask a doctor and she taught us how to read our lab levels and to present an outline to the doctor so that they would be able to understand where we were coming…”Darcy
Confidence2 of 13 mentioned it
“And I am a firm believer, and especially because health is my #1 value, I'm a firm believer that we should have choice and we should be able to know who we're working with and have a sense of trust with the person.”Debora Wayne
Mood & stress2 of 13 mentioned it
“It's impacted my life, I've been able to help my husband and my two daughters who also are struggling. my husband was struggling with major depression. but he's had that for years and we just couldn't figure out why a…”Alane Weissman
Family & relationships2 of 13 mentioned it
“Amie one-on-one, that would be the ultimate because there's no question in my mind that she will make you better. she has helped me and helped my family and I just can't her enough for all that she does, and anyone th…”Alane Weissman
Less medication2 of 13 mentioned it
“If I had gone in and felt like I was being pushed toward a certain treatment plan, or if I was being pushed toward taking a certain type of medication, I feel like I would have been putting the brakes on.”Evelyn VanZant
Less pain1 of 13 mentioned it
“I'm the founder and the CEO of the International Chronic Pain Institute. years ago, I became very, very frustrated seeing that in the healthcare industry, we were losing our sense of power over who we worked with and…”Debora Wayne
More energy1 of 13 mentioned it
“After I completed the program, my energy levels have increased because I have learned how to manage the supplements and to work, hopefully, with a good doctor who can prescribe the right medication for me.”Darcy

See the full data tables for Patient Advocacy →Read the research write-up →

How long it took

Over a year · 1

Stories in this topic

Showing 12 of 13 interviews.

What people were sceptical about first

“If there was anything that made me hesitate about working with Dr. Mastro is that my insurance doesn't cover these visits. So that was difficult. And the way I processed it was to think of this as an investment. I'm an investor, and I thought, I'm going to pu…”Laura Agadoni
“It is definitely worth the investment. I say that after trying to do it on my own for a while; I couldn't have done it without Dr. Orsburn and therefore that makes it all worth it. I try not to think about it as expensive; I try to think of it as an investmen…”Jenni Wermers
“So, before I started the program - I have the same health provider and I didn't really know what questions to ask.”Darcy

Frequently asked

Is hospice care scary for families who haven't experienced it?: Stacey Lievens acknowledges that the word 'hospice' is scary to many, but explains that Empowered Endings removes that fear by giving patients a say in how they exit this lifetime. She describes the process as effortless and easeful rather than clinical or invasive. — Stacey Lievens
How quickly can Empowered Endings respond to a crisis?: Stacey reports that after calling Dr. Bob Uslander to report her stepfather's declining health, he arrived at their home within the hour to assess the situation and bring in his nursing team. — Stacey Lievens
How does Empowered Endings treat non-responsive patients?: Stacey highlights that even though her stepfather Edgar was in a coma and non-responsive, the nurse talked to him directly, explaining every action with love and empathy to ensure he remained a dignified participant in his own process. — Stacey Lievens
How can I find healthcare providers that aren't just approved by my insurance?: Debora Wayne notes that KnoWEwell shows all possible solutions, not just those approved by insurance companies. This allows patients to discover leading-edge treatments and providers they would otherwise never know about. — Debora Wayne
How do I avoid feeling like just a number at the doctor's office?: Debora Wayne suggests using KnoWEwell to explore and resonate with professionals ahead of time. The platform allows you to get a sense of the provider before entrusting them with your or your child's care, ensuring a sense of trust. — Debora Wayne
Is there a way to see all healthcare choices under one umbrella?: Yes, Debora Wayne highlights that KnoWEwell brings together all healthcare choices in one place. This enables patients to see who they will be working with and what type of treatment they will receive before making a decision. — Debora Wayne